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The Boy Whose Skin Fell Off(2004)

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时长:未知

上映时间:2004

语言:英语

地区:英国

导演: Patrick Collerton

演员: Edna Kennedy Jonny Kennedy 内尔·麦克安德鲁

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简介:Ayearago,36-year-oldJonnyKennedydied.HehadaterriblegeneticconditioncalledDystrophicEpidermolysisBullosa(EB)-wh……更多>>

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《The Boy Whose Skin Fell Off》The Boy Whose Skin Fell Off》剧情内容介绍

《The Boy Whose Skin Fell Off》

剧情内容介绍

The Boy Whose Skin Fell Off

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his ...

《The Boy Whose Skin Fell Off》评价

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Robert 2011-12-18

这是一部用一个小时就能看完,却大概一生也摆脱不掉的纪录片。那种阴影远远不止于**的不安和心理的恐惧。我们的生命会,也本该因为世间存在这样的苦痛而变得沉重一些,脆弱一些。